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Q1.
Coming to terms with becoming a parent of a child with a
disability has been one of the most challenging experiences of my life. All
of a sudden all those baby books don’t make any sense. Nothing makes any
sense. The milestones, the celebrations, the difficulties all take on a
completely different look and feel. Parenthood is isolating enough but when
your child is not invited for play dates, when none of the children invited to
his birthday parties come or even RSVP, when going to a children’s museum is
out of the question, parenthood is doubling isolating. You’re supposed to be
in
Paris and
you’re somewhere completely different, not knowing where.
Someone hands you a pile of papers, invites you to a
‘Team/TEAM’ meeting. People start talking about your child and telling you
what your child needs and how they will be helping your child. You are
grateful that they are helping him. You know he needs help. You are doing
everything humanly possible, even at the expense of your other children
and a spouse or significant other in your life. You have no life. Your life
is how can you meet your child’s needs, whose diagnoses you think you
understand but are not quite sure how to explain it to yourself.
School? How will he manage? Home school, yes….no…
School … they step in. Rockport was active in implementing
the required services for my son in the early years. The evaluations were
done. The interventions were conducted. The meetings were held. They knew
what they needed to do. They did it. They reassured me that he was doing
well. They were positive about his progress. They were helpful for him.
Q2.
They did not inform me, in a way in which I was able to
understand, what the next steps would be. It was not explained to me what and
where and how this all works. I was not given the necessary information from
them (other than a form letter from the director informing me of IDEA 2004
P.L. 108-446, Section 615(d) & (k)…which stated something written in English
but at this point I’m still trying to understand my child’s disability).
I thought that at one point they would start to explain the
process to me in a way that I would understand. They did not. I would like
to see that change. I would like to see that be a policy. The team members,
employed by the school system understand that the parent is on the same team
as they are and that their job is enhanced by the participation of the parent
– as the parent understands the regulations. I would like to see the
department understand that the parent is not to be dictated to, patronized,
placated, bribed, ignored, criticized, and isolated but to be supported by
educating them as to what the truth of the system is. If the parent is
treated with disrespect, then the department will have it returned to it. If
any of the members do not understand the rules, the process stops
until everyone does. This is especially crucial for parents of pre-k and
kindergarten children.
Direction and vision without action is apathy and maintains
the status quo. I’d like to see more direction and vision for the entire
Special Education department.
A manager is only as good as his/her weakest member of
his/her staff. The occupational therapy offered at the elementary school is
one of the weakest programs I have ever seen. The therapist needs to be
replaced with a more highly qualified therapist capable of doing physically
challenging gross-motor activities with very active young children. The
advancements in OT have far exceeded any knowledge of the occupational
therapist on staff. In fact, one very common diagnosis, sensory integration
disorder, was studied extensively and documented with treatment (often not
covered by insurance) a good ten years after this OT was certified.
Irregardless of that fact, the OT is unsuited for the position she holds and
must be replaced.
I’d like to see the use of Assistive Technologies in the
classroom.
I would like to see Special Education teachers
rewarded for hard work. For example, an Outstanding Special Education
Teacher Award . The following information can be of help.
Agency: National Association of Special Education Teachers
Program: NASET Outstanding
Special Education Teacher Award
Eligibility: A candidate
for the NASET Outstanding Special Education Teacher Award will meet the
following criteria:
-
Be nominated by anyone involved in the field of
special education (e.g. colleague, administrator, parent of a child with a
disability, etc.)
-
Be a full-time, certified or licensed, special
education teacher
-
Be a highly dedicated, knowledgeable and skilled
teacher
-
Be in at least the third year of teaching
Purpose:
This award is bestowed on special education teachers who have demonstrated
outstanding achievement as a teacher in the field of special education. It
recognizes and rewards the special skills and excellence of special education
teachers throughout the
United States
.
This award bears the NASET official seal, the
recipient's name, the name of the award, and the date awarded.
More Information:
National Association of Special Education Teachers
1201 Pennsylvania Avenue, N.W.
Suite 300
Washington
D.C.
20004
800-754-4421 - Voice and Fax
contactus@naset.org , URL:
http://www.naset.org/specialeducationteac.0.html
Communication.
Communication with teachers who teach the
‘specials’, with staff, with parents is needed. Special Education is an asset
to the school system. Communication with the community, open up to what
wonderful things are being done by dedicated, over-worked and sometimes under
qualified staff. Doing things assuming others don’t care, don’t want to know,
don’t care to know is not what makes others understand. Hiding is something
special education should not be doing. Privacy is different. Educating the
public to how SPED works, what it supports, how it is enhancing the lives of
students is what the department needs to communicate with the school and the
greater Rockport community. If the department shows no interest in the larger
community, there can be only anger, ignorance, fear and resentment towards
it. Having investments in the community and recognizing that without the
community it could not support its students, brings partnership and respect to
both.
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